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CHILD HEALTH INTERNATIONAL

Helping children with Cystic Fibrosis live life

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Estonia

Early days 2006 to 2009

Visit to Cardiff March 2014

Visit to Tallin and Tartu October 2014

CHILD HEALTH INTERNATIONAL > Estonia
2 days ago

Given the current crisis all support involving travel has to be postponed but our partners can still communicate by phone or email. Our thoughts are with CF patients and their carers and doctors everywhere at this frightening time.
Meanwhile, a team from Winchester University HUB reviewed our communications during January and February and suggested several improvements. Follow-up is slow due to the ban on meetings but we hope to have a much livelier social media presence soon. ... See more

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4 months ago

Just back from the first Russian CF conference for parents and clinicians in Yaroslavl where we gave talks on Transition to Adult Care, The Role of a Nurse Specialist, Palliative Care and Clinical Trials to an audience of about 280 doctors, nurses, parents and ngo volunteers.
Also agreed a plan for further 'Master Classes' for Russian physios and some study visits to the UK all of which will help them improve CF care, particularly in regional centers. ... See more

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5 months ago

After much form filling our Russian visas have arrived! Three from CHI will be going to 'The First Russian Forum of Healthcare and Social Organizations' in Yaroslavl in November. We'll talk about the Role of the CF Specialist Nurse in the Multi-disciplinary Team, the Transition from Paediatric to Adult Care and how the medical profession and social organisations can work together - all new topics our hosts are keen to explore. We'll also be finalising plans for physiotherapy workshops and young doctor training in the New Year. ... See more

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6 months ago

Professor Katerina Manika is about to take charge of one of the CF service in the Aristotle University of Thessaloniki, one of only two CF centres in Greece. To prepare for her new responsibilities she came to Southampton to see how CF is managed here. She writes:
“My 3-month training period in the Adult Cystic Fibrosis Service, Southampton was an extremely useful and interesting experience. I had the opportunity to observe the every-day work in the service including ward rounds, routine clinic appointments, annual review assessments and emergency admissions. I got acquainted with the different members of the multidisciplinary team- dieticians, physiotherapists, doctors, nurses, pharmacists, psychologists and social workers. In addition I met with other specialists who join the CF service such as diabetes and palliative care experts, microbiologists, gastroenterologists and ENT surgeons.
My training on CF care in Adult Cystic Fibrosis Service in Southampton England has been a multidimensional experience which I hope will change my every-day work in Greece. I would like to thank all the members of the multidisciplinary team for their time and for sharing their knowledge and experience with me. I am also grateful to the Child Health International for making this training possible. I would especially like to thank Dr Mary Carroll for coordinating this complex training, for introducing me to a different and wider way of thinking on CF care, and for always making me feel welcome.” ... See more

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9 months ago

Erika, Michael and Alex after arriving in Paris by bike from the UK to raise money for Child Health International.

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