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Newsletter Summer 2020

Newsletter Summer 2020

CHILD HEALTH INTERNATIONAL > Newsletter Summer 2020
1 month ago
ECFS Patient Registry - CF-Europe

The European Cystic Fibrosis Society (ECFS) Patient Registry collects patient data that is valuable to CF clinical caregivers and researchers, yet the value to patients is often not that clear. […]

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2 months ago

Birgit Dembski, health project manager of the German association Mukoviscidozis e. v. and cystic fibrosis patient turned 60 years old on 6th November.
This woman is an example that offers hope for CF patients everywhere. Her will to live, her dedicated work for the benefit of other patients in Germany and in countries like Moldova, her care and responsibility for her own health and for the health of others inspires a lot and shows us that a person affected by cystic fibrosis can do wonders, both for their own health and for others. ... See more

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5 months ago

Covid 19 rules out any visits but Dr Legg reports "I’ve been having a lot of contact recently with the team in Bulgaria largely regarding clinical cases. It now looks as though the national meeting that I am helping organise in Varna will have to be delayed to early 2021". ... See more

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5 months ago
Învingem Fibroza Chistică în Moldova

Good news from our partners in Moldova.

În această perioadă mai complicată, în care fiecare dintre noi încearcă să se adaptează la noul ritm de viață în condițiile de pericol de infectare cu COVID19 am fost mai putin prezenți pe online.

Ceea ce ne bucură este că pacienții noștri au respectat recomandările autorităților de a sta acasă și au știut să țină legătura cu specialistul CF, Oxana Turcu la telefon, în cazuri de neclaritate sau urgențe.

Acum, Centrul Ambulator de Fibroză Chistică și Alte Maladii Rare a revenit la programul de lucru obișnuit. Este nevoie de programare în avans pentru consutația la Centru, pentru a evita supraaglomerațiile.

Iar, noi vrem ca specialiștii care consultă la Centru să poată lucra în siguranță. Din 𝐟𝐨𝐧𝐝𝐮𝐥 𝐝𝐞 𝐫𝐞𝐳𝐞𝐫𝐯𝐚̆ 𝐚𝐥 𝐀𝐬𝐨𝐜𝐢𝐚𝐭̦𝐢𝐞𝐢 au fost 𝐩𝐫𝐨𝐜𝐮𝐫𝐚𝐭𝐞 𝟏𝟎𝟎 𝐝𝐞 𝐡𝐚𝐥𝐚𝐭𝐞 𝐝𝐞 𝐮𝐧𝐢𝐜𝐚̆ 𝐟𝐨𝐥𝐨𝐬𝐢𝐧𝐭̦𝐚̆.

#anifc #lucruribuneacasa #fibrozachistica ... See more

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6 months ago
childhealthinternational.org

Our latest newsletter is now available on the website. Click here http://childhealthinternational.org/wp-content/uploads/2020/07/Newsletter-Summer-2020.pdf

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7 months ago

CHI is recruiting. We are looking for:
Someone with web publishing and social media skills to develop our supporter communications.
A new chair to steer the charity through its next stage of development.
If you could help, please get in touch. ... See more

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8 months ago
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