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Helping children with Cystic Fibrosis live life

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Newsletter Summer 2020

Newsletter Summer 2020

CHILD HEALTH INTERNATIONAL > Newsletter Summer 2020
2 months ago
Photos from Child Health International's post

Huge thankyou to all our wild swimming supporters! We’ve seen loads of very impressive underwater handstands and the donations have been rolling in for this #CaptainTom100 challenge... a very talented bunch 👍

The challenge is to get 100 swimmers to do a handstand, post a picture and donate £5 through the link below.

https://bit.ly/2QLqTMs

If you’re hitting the open water his weekend why not give it a go and join in... we make no judgement on quality! ... See more

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2 months ago
What could you do 100 times for charity??

Any plans this weekend? How about getting involved in Virgin Money Giving’s #CaptainTom100 challenge 👍

Pick something you love, do it 100 times and help us raise much needed funds to ensure children living with #cysticfibrosis abroad get the care and the life they deserve!

How about 100 underwater handstands 🤔

Follow this link to get started 👉 https://bit.ly/3nEjGKq ... See more

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2 months ago

Have you got a #CaptainTom100 challenge planned? No... well let’s get are thinking caps on! Do something you love 100 times, raise money and help us raise much needed funding to support children living with #cysticfibrosis abroad.

All you need now is a good idea 💡 ... See more

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3 months ago
Cystic Fibrosis Trust

Can you spare a moment to help CF Europe by filling in their survey? The research will aid understanding on access to CF care across Europe, something we know is hugely variable across countries.

And don’t forget to share, the more people who complete this survey, the better that understanding will be and the greater the benefit to those currently missing out! ... See more

If you’ve got a few minutes this week, please fill out CF Europe’s research survey to help them understand access to CF care and treatments in different countries.
If you're a patient:
https://www.surveymonkey.com/r/QY5VXFS
If you're a caregiver:
https://www.surveymonkey.com/r/Q2JXNVG
If you're a clinician: https://www.surveymonkey.com/r/Q2HD57B ... See more

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4 months ago
Kaftrio: Pending EC decision - European Medicines Agency

With important changes recommended by the Committee for Medicinal Products for Human Use (CHMP), potentially giving a much larger proportion of the #CysticFibrosis community access to modern drugs, we cannot ignore the global disparity in care.

Without early diagnosis, and clear pathways to care, these changes exclude many vulnerable people living with cystic fibrosis.

Follow Child Health International to stay updated on our work, sharing expertise and building international medical partnerships to give every child access to the care and the life they deserve.

https://www.ema.europa.eu/en/medicines/human/summaries-opinion/kaftrio-0?fbclid=IwAR2UN4luHWlegngHmcZSI99snwR60Dr1TudT9v5RJUngBl4mEet6FAEYvrc ... See more

Kaftrio: Pending EC decision

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