A first Russian CF Forum, deliberately bringing together medical CF personnel and CF social welfare organisations at Yaroslavl, NE of Moscow on the Volga. CHI was represented by Dr Mary Carroll, Adult CF Consultant, Judi Maddison, paediatric CF Nurse Specialist, accompanied by Jim Hopwood, CHI Chairman. A good number of parents was present. Topics covered by the CHI team included transition from child to adult care, palliative care and clinical trials.
As a result of these events, the following matters formed an agenda for ongoing collaboration:
- To deal with a critical shortage of CF kinesitherapists, Russian Federation-wide, CHI to run some 2 day physiotherapy master classes in Moscow, St Petersburg, Kazan, Samara and to arrange these either in conjunction with a national Russian CF conference or with kinesitherapy courses organised by Ostrova in St Petersburg annually in April and September.
- A handful of individual requests for training at RBH, all of which will require each person to complete the RBH online course and to have a certain degree of competence in the English language.
- Request for help on how to treat difficult cases – for example consultant to consultant via Skype, Zoom etc.