All Child Health International’s projects are initiated by someone getting in touch and asking for help.
Requests for assistance can be made by any group or individual. So, whether you are the head of a cystic fibrosis clinical team, part of a parents’ association, or simply someone engaged with the CF community, if you feel there’s a role for us to play in improving local CF care in your area, please get in touch.
Follow the links below to find out more about the work we do, or simply email us at firstname.lastname@example.org to start exploring ways we can work together.
We have compiled links to advice and guidance offered by various specialist cystic fibrosis centres below. If there are additional resources you would like to see included, or require help with translations, please get in touch at email@example.com and we will try our best to help.
Standards of CF Care in Europe provides recommendations for staffing levels, clinical facilities and record keeping for specialist CF centres, developed by a team of European experts.
Nutrition: a Guide for Children and Parents is published by the UK Cystic Fibrosis Trust. The Trust also provides a series of fully accessible diet and nutrition leaflets, produced with the help of dietitians from the Cystic Fibrosis Dietitian Group UK (CFDGUK).
Further information on cystic fibrosis is available from:
- Cystic Fibrosis Trust
- Cystic Fibrosis Europe
- European Cystic Fibrosis Society (ECFS)
- Wikipedia list of Cystic Fibrosis related organizations