Following an exploratory visit to Bulgaria, Dr Julian Legg concluded that the most useful improvement in the treatment of CF in the country at the present time would be the development of a register of CF patients. He arranged to meet Dr Lutz Naehrlich, Director of the European Cystic Fibrosis Society Patient Registry at a CF Europe conference in Sofia.
The outcome is a plan to hold a two-day conference, probably in Varna, to establish a National Patient Register. The conference will be attended by representatives from all four CF centres in Bulgaria. It will be part funded by Abbott Laboratories and will be facilitated by our team from Southampton Children’s Hospital.