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The recent advances in cystic fibrosis drugs and treatments in the UK has highlighted the growing inequality in care for so many children and young adults living abroad. Added to the impact of Covid-19 on cystic fibrosis communities worldwide and the disparity in vaccine availability, Child Health International’s work has become more important than ever. We need more supporters to …

Ukraine

20022011 In conjunction with its Lviv-based partner, Dzvin, CHI organised a week-long visit to the Ukraine in April 2002 to improve the care of children with cystic fibrosis. The UK team is based at the Royal Brompton Hospital, London and was led by Dr Mark Rosenthal. Later in the year, Ukrainian medical specialists and health officials paid a return visit …

Serbia

Serbian Visit to Southampton – May 2014 Background Dr Knight from Frimley Park led a visit to the Mother and Child Health Institute of Serbia in Belgrade in 2003 along with a physiotherapist and a specialist nurse. In 2012 Jim Hopwood met Dragan Durovic, president of the parents’ association at the CFE conference in Dublin, sporadic correspondence followed but no …

India

BACKGROUND Cystic Fibrosis (CF) was first described in 1938/39 in Europeans. At the time it was assumed that it didn’t occur in other racial groups. Occasionally this condition was recognised as being mild, but in around 70% of cases if untreated it was known to lead to death within the first months or years of life. With optimal treatment in …

Estonia

Early Days 2006-2009 Visit to Cardiff March 2014 Visit to Tallin and Tartu October 2014 Early Days CHI undertook a preliminary visit to Vilnius, Lithuania in December 2005 and a fuller visit in March 2006. Thereafter a steady programme of collaboration with Lithuania has continued. It led to a visit to UK in February 2008 by Professor Sigitas Dumcius and …

Belarus

BACKGROUND Nicola Collins gives physiotherapy demonstration and leads discussion. This is a report of the visit to Minsk 24th to 28th September 2007, a major part of the CHI Belarus Cystic Fibrosis Project. This visit took place as a result of collaboration betweenSolvay Pharmaceuticals GmbH (now Abbot) (represented by Dr. Ulrike Tanneberger) and Child Health International. Solvay sponsored the project at an estimated cost of …

Albania

This page covers two visits: from the UK to Albania in May 2012, and from Albania to the UK in March 2013. Visit to Albania, May 2012 The visit was arranged at the invitation of Mirela Idrizaj, chair of the Albanian League of Cystic Fibrosis in conjunction with Prof. Evda Veveka of the National Children’s Hospital in Tirana. The CHI …

Lithuania

Lithuania flag

Report on visit to Vilnius 19 – 22 October Introduction and objectives Over a three day period in late October a team of experienced clinicians from the Royal Brompton Hospital visited the Paediatric Cystic Fibrosis service at Vilnius University Hospital. Working alongside colleagues in Vilnius, they held five outpatient clinic sessions, organised in a fully multidisciplinary way to represent as …

Latvia

Page ContentsCF and Latvia – the story begins20082008 – Visit analysis200920102012201520162017 CF and Latvia – the story begins As we began thinking about the re-design of our own website, we looked at other cystic fibrosis related websites. On Cystic Fibrosis Worldwide’s website ( www.cfww.org )in March 2007, we found this plea for help from Latvia: Doctors in Latvia are not interested in …

Estonia

Tallinn & Tartu October 2014 Aims To establish an understanding of the strengths and weaknesses of the service for CF patients in Estonia. To give a presentation to medical staff in both Tallinn & Tartu to explain the methods and approaches used by staff in Cardiff. To deliver PEP masks donated by CHI and give practical demonstrations in their use …